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April May improvements?

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Sadly, CC is still not okay, but there is some good news! As April draws to a close and we head into May, CC is not as bad as she was in February. What happened? Well it's hard to say and even harder to find the time to go into details; a reality with which many carers/caregivers will be familiar. And here's another thing to which every carer/caregiver can relate: an apology for not following up on a commitment. For example, in my prior post I said would update the site to share details of what went on in February. I still think some people might benefit from reading an account of CC 's horrendous hospital experience: the five hours sitting in an ambulance parked outside the entrance to A&E (ER), and the eight-hour wait after that to be seen by a doctor. Not to mention the 36 hours I had to stay awake to make sure CC got as much appropriate care as I could muster from the massively overworked doctors and nurses. And the deeply unsatisfactory patient discharge process.  ...
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February 2026 Update

On Wednesday, February 4, my partner took a turn for the worse. On our doctor's advice an ambulance was called and she was admitted to hospital. What followed was a 72-hour medical nightmare. While CC survived this, her condition now is worse that it has been for a long time.  I will be updating the site to share what went on, and what may be going on. I need to research and share some new items on the diagnostic agenda — like acute delirium and Rapidly Progressive Dementia (RPD), while at the same time working on meeting her evolving care needs.
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Sadly no, my partner's not okay

Since 2006, my partner has been unable to work due to health problems. We met and became a couple in 1985. We were both 32 years old. We got married in 1989. About a decade later her health began to decline, even as her career in IT was taking off. For the purposes of this website I will call her CC. For the last two years CC has been homebound, spending the majority of the day in bed, in various degrees of pain and discomfort, only leaving the house for medical appointments.  Most of our friends and family know CC has not been well for a long time, as do some of our neighbours and people with whom I work.  This means I am often asked questions like these: Is CC okay? How's CC today Is CC doing any better?  How's your wife doing these days? These questions are indicative of concern and empathy, and as such they are greatly appreciated. However, I find it hard to provide answers that are at once accurate, brief, and helpful. Too often I have given spur of the moment answer...
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